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April 4, 2008 | Candi Caldwell (Sacramento, CA)

Posted on April 7, 2008 at 11:24AM by Registered CommenterSEIU Admin | Comments Off

I would like for you to know how difficult it is me on a day to day basis and everything i tell you might be sad but it is the truth i have a special needs child who has multiple problems he is blind,cp,autism,bad allergies to everything can't cook nothing with spices can't take him to the restaurants or to the malls because of his allergies being so bad he has asthma attacks,learning disabilities i am finding it very hard to get by day to day i am alone im a single mother with no friends and no family i do have a boyfriend but he is really sick and tries to help me the best he can i strive everyday just to make sure my son can learn his eductaion at home as well as at school my rent is to high and due to my bad credit this was the only landlord who would trust me to pay my bills on time.I am on the healthcare plan but can't go to the doctors myself because i can't even pay the copay i am the only who can take care of my son and i have to stay healthy but i have some issues with my health and only get looked at once a year at the hospital.I have two other children by the same dad who wants nothing to do with our son but got custody of my 2 girls and i have been trying to prove to them that he is unfit and has a drinking problem i can no longer fight the system to help my two other kids who should have lived with their baby brother in the first place i am only in able to protect one child which is my special needs son at this time all my money had gone out for lawyers gas fixing my sons car so he can get back and forth to school and appointments.I take care of my son 7 days a week and 24 hours a day except when he is at school i get paid for maybe 5 hours a day.He is to hard for anyone else to even watch him because of all his problems they would have to watch him at my house spend time with him before they even got to watch him he has loud educational devices and my brother who tried to watch him once couldn't even do it although he is not around anymore for private reasons.Here is my day and this is a everyday thing he gets up at 7:30 am to go to school while he is at school i have to come home and do laundry because he socked his blankets and is in a diaper still then i have to clean up his mess he left before he went to bed then i go pick him up at school at 12:15 he comes home i have to change his wet diaper which they did not change at school and always having to get something for him that he wants i make him a bottle and give it to him i do this all day pattern which i never get to sit not even for 5 minutes he always wants something or making a mess we do his braille work then read he goes to bed between 12pm-3pm because he has bowel problems sometimes he is up half the night i have to change his diaper at least every 30 min or more if he has had his bathroom medicine to help him because if not he gets a very bad diaper rash i have to clean him with special cream because of this reason i wish someone could come out to see how hard it is to care for him without no help from family and friends i am telling you i am alone all alone except for my boyfriend i don't have time for anybody i have no time to socialize at all unless it is at one of my sons special events which he has three of every year.My phone does not ring no one has ever knocked on my door in the 3 years i lived here so i hope you get the picture i need to keep the pay and hours i recieve and without my cost of health insurance going up i can't take care of anyone else and can't get a job not with my son's health issues and they can be life threatining if you think i am kidding and don't believe i have no life because there is only time for my son you can walk in my shoes for a day anyday stay 24 hours and you will understand how lucky all of you politics are the money you recieve your health insurance retirement nice homes nice cars live on what i live on and see if you don't have a problem with the way things are working out if you come to my house you will see i have not got nothing in here that is not my son i have 3 pair of pants and shirts the vehicle belongs to my son for his things although it is in my name i drive it but to me it belongs to him all the rooms are filled with his things please i am begging you if you even spent a day in someone else's shoes i can tell you this will open your eyes for sure and you will want to fix the problems i guarntee it.

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